HAM-TMC Library
Websites
The following websites cover a variety of medical, scientific, reference, and educational topics. Browse the alphabetical list or search for terms that appear in the website descriptions.Browse
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ADVOCACY Websites
The Library has 299 websites and
15 results for the descriptor "advocacy".
- 1. AHIMA (American Health Information Management Association)
- Provider:American Health Information Management Association (AHIMA)
- Keywords: advocacy , education , ethics , informatics , workforce , healthcare administration , jobs , continuing education , electronic health record , information technology , information management
- Description: AHIMA is a professional organization advocating standards for the confidentiality and security of the patient medical record or personal health record, health information exchange, and the integrity of information practices. The organization's position statements on these and other matters pertaining to health information management and records management are available to read here. AHIMA also provides links to educational and career resources for those considering careers in health information management and for those already in the field.
- 2. Alliance for Nursing Informatics (ANI)
- Provider:Alliance for Nursing Informatics
- Keywords: advocacy , informatics , networking , nursing , standard of care , jobs , continuing education , electronic health record
- Description: The Alliance for Nursing Informatics is a coalition of more than 20 nursing informatics groups in the United States. Paraphrasing some of this organization's stated areas of concern: 'providing a mechanism for transforming care; developing resources, guidelines and standards for nursing informatics practice; education, scope of practice, research, certification, public policy, terminology, best practice guidelines; mentoring, advocacy, networking and career services.' A linked list of member organizations and a page of linked news and events are provided, along with information on the TIGER Initiative, which "...seeks to better prepare practicing nurses and nursing students to use technology and informatics to improve the delivery of patient care."
- 3. American Association for Cancer Research- Survivors and Advocates Page
- Provider:American Association for Cancer Research
- Keywords: advocacy , cancer , consumer health , portal , research , organizations, societies , family , patient education
- Description: This section of AACR's website presents "...an extensive list of cancer support and advocacy organizations, government and research institutions, and useful websites. Find organized lists of groups dedicated to specific types of cancer."
- 4. American Lung Association
- Provider:American Lung Association
- Keywords: advocacy , clinical trials , consumer health , wellness , environmental , organizations, societies
- Description: Provides consumer information on pulmonary diseases and conditions, clinical trials, smoking cessation, current research activities, statistics and more.
- 5. American Medical Informatics Association (AMIA)
- Provider:AMIA (American Medical Informatics Association)
- Keywords: advocacy , education , healthcare policy , informatics , video , standard of care , electronic health record
- Description: This organization "...is dedicated to promoting the effective organization, analysis, management, and use of information in health care in support of patient care, public health, teaching, research, administration, and related policy." Some resources here are for members only. The Education section includes links to podcasts and mp3 files of informatics classes and recorded conference proceedings, many of which are free.
- 6. ConsumerMedSafety.org
- Provider:Institute for Safe Medication Practices (ISMP)
- Keywords: advocacy , consumer health , drugs , pharmaceutical , pharmacy , safety
- Description: This website comes from the nonprofit organization ISMP (Institute for Safe Medication Practices) in partnership with the FDA, the American Hospital Association, the Joint Commission of Healthcare Organizations and others. The ISMP aims to help prevent medication errors through collecting and analyzing reports of medication-related hazardous conditions, near-misses, errors, and other adverse drug events and making the information available to consumers and the health care community. Consumers are encouraged to contribute information here via a forum for reporting medication errors. This site offers a feature (free registration required) called "Get Your 60 Second Medication Check," which lists potential side effects, treatment duplication and drug interactions for various medications. Patient information inserts are also available full text, in .pdf format.
- 7. Depression and Bipolar Support Alliance
- Provider:Depression and Bipolar Support Alliance
- Keywords: advocacy , consumer health , mental health
- Description: From the website: "The Depression and Bipolar Support Alliance (DBSA) is the nation’s leading patient-directed organization focusing on the most prevalent mental illnesses, depression and bipolar disorder. The organization fosters an understanding about the impact and management of these life-threatening illnesses by providing up-to-date, scientifically-based tools and information written in language the general public can understand. DBSA supports research to promote more timely diagnosis, develop more effective and tolerable treatments and discover a cure. The organization works to ensure that people living with mood disorders are treated equitably.
- 8. DisasterHelp - Your Guide to Disaster Recovery Resources
- Provider:FEMA (Federal Emergency Management Agency)
- Keywords: advocacy , consumer health , disaster , emergency medicine , federal agencies , gateway , portal , public administration , public health , Spanish , social services , RSS feed , safety , weather , emergency preparedness
- Description: This website is a comprehensive, well-organized portal to disaster resource websites chosen from important federal, state and local sources. There are links to news feeds on weather and declared natural disasters; information on dealing with immediate, basic needs- food and water, shelter, First Aid. Links to CDC and OSHA information on chemical contamination/decontamination are listed. Resources from cleanup to applying for federal aid and benefits, from psychological help to preservation of essential personal papers, are linked here. Paths to information targeted for parents, homeowners, business owners and farmers in the aftermath of a disaster are also provided.
- 9. Mental Health America
- Provider:Mental Health American (formerly National Mental Health Association)
- Keywords: advocacy , healthcare policy , mental health
- Description: From the website: Mental Health America (formerly known as the National Mental Health Association) is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. With our more than 320 affiliates nationwide, we represent a growing movement of Americans who promote mental wellness for the health and well-being of the nation – everyday and in times of crisis.
- 10. National Alliance on Mental Illness (NAMI)
- Provider:NAMI
- Keywords: advocacy , consumer health , mental health
- Description: From the website: NAMI (the National Alliance on Mental Illness) is the nation’s largest grassroots mental health organization dedicated to improving the lives of persons living with serious mental illness and their families. Founded in 1979, NAMI has become the nation’s voice on mental illness, a national organization including NAMI organizations in every state and in over 1100 local communities across the country who join together to meet the NAMI mission through advocacy, research, support, and education. NAMI is dedicated to the eradication of mental illnesses and to the improvement of the quality of life of all whose lives are affected by these diseases.
- 11. National Coalition for Cancer Survivorship (NCCS)
- Provider:National Coalition for Cancer Survivorship
- Keywords: advocacy , cancer , consumer health
- Description: The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances, and delivers quality cancer care. NCCS organizes Cancer Advocacy Now!™, a legislative advocacy network that engages constituents across the country in federal cancer-related issues. Patient education is also a priority of NCCS.
- 12. National Institute of Mental Health: Mental Health Topics
- Provider:NIH National Institute of Mental Health
- Keywords: advocacy , clinical trials , consumer health , diagnosis , mental health
- Description: From the website: Mental disorders are common health conditions. Information about the signs and symptoms, diagnosis, and treatment for: * Anxiety Disorders * Attention Deficit Hyperactivity Disorder (ADHD, ADD) * Autism Spectrum Disorders (Pervasive Developmental Disorders) * Bipolar Disorder (Manic-Depressive Illness) * Borderline Personality Disorder * Depression * Eating Disorders * Generalized Anxiety Disorder * Obsessive-Compulsive Disorder (OCD) * Panic Disorder * Post-Traumatic Stress Disorder (PTSD) * Schizophrenia * Social Phobia (Social Anxiety Disorder) Getting Help: Locate Services Locate mental health services in your area, affordable healthcare, NIMH clinical trials, and listings of professionals and organizations.
- 13. Obsessive-Compulsive Foundation
- Provider:Obsessive-Compulsive Foundation
- Keywords: advocacy , consumer health , diagnosis , education , mental health , psychiatry , research
- Description: The mission of the OCF is to educate the public and professional communities about OCD and related disorders; to provide assistance to individuals with OCD and related disorders, their families and friends, and to support research into the causes of, and effective treatments for, this disease.
- 14. PRIM&R: Public Responsibility in Medicine & Research
- Provider:Public Responsibility in Medicine and Research
- Keywords: advocacy , biomedical ethics , biomedical research , clinical studies , clinical trials , education , ethics , healthcare policy , laboratory , law , policy , quality , research , safety , animal welfare
- Description: Via publications and press releases, accreditation, education and networking activities funded through memberships, this organization promotes the ethical treatment of human and animal research subjects. Some of the white papers and general information are freely accessible, but much of the site is restricted to PRIM&R members.
- 15. World Institute on Disability
- Provider:World Institute on Disability
- Keywords: advocacy , consumer health , disability
- Description: From the website: "The World Institute on Disability is an internationally recognized public policy center organized by and for people with disabilities. It works to strengthen the disability movement through research, training, advocacy and public education to help people with disabilities throughout the world enjoy increased opportunities to live independently."
